Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis

Jan 26, 2023JMIR human factors

How People with Depression Experience Using Remote Symptom Tracking Technology Over Time

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Abstract

A longitudinal qualitative study involved 124 interviews with 99 participants across three countries to explore long-term engagement with remote measurement technologies (RMTs) for major depressive disorder (MDD).

Five main themes emerged regarding the subjective experience of long-term RMT use: research-related factors, utility for self-management, technology-related factors, clinical factors, and necessary system amendments.
Participants highlighted both experiential factors, which reflect their personal engagement with RMTs, and system-related factors, which pertain to their direct interaction with the technologies.
Insights gathered may inform future recommendations for enhancing user engagement with RMTs in both research settings and clinical practice.
Understanding these themes is essential for promoting sustained use of RMTs among individuals managing MDD.

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BACKGROUND: Remote measurement technologies (RMTs) have the potential to revolutionize major depressive disorder (MDD) disease management by offering the ability to assess, monitor, and predict symptom changes. However, the promise of RMT data depends heavily on sustained user engagement over extended periods. In this paper, we report a longitudinal qualitative study of the subjective experience of people with MDD engaging with RMTs to provide insight into system usability and user experience and to provide the basis for future promotion of RMT use in research and clinical practice.

OBJECTIVE: We aimed to understand the subjective experience of long-term engagement with RMTs using qualitative data collected in a longitudinal study of RMTs for monitoring MDD. The objectives were to explore the key themes associated with long-term RMT use and to identify recommendations for future system engagement.

METHODS: In this multisite, longitudinal qualitative research study, 124 semistructured interviews were conducted with 99 participants across the United Kingdom, Spain, and the Netherlands at 3-month, 12-month, and 24-month time points during a study exploring RMT use (the Remote Assessment of Disease and Relapse-Major Depressive Disorder study). Data were analyzed using thematic analysis, and interviews were audio recorded, transcribed, and coded in the native language, with the resulting quotes translated into English.

RESULTS: There were 5 main themes regarding the subjective experience of long-term RMT use: research-related factors, the utility of RMTs for self-management, technology-related factors, clinical factors, and system amendments and additions.

CONCLUSIONS: The subjective experience of long-term RMT use can be considered from 2 main perspectives: experiential factors (how participants construct their experience of engaging with RMTs) and system-related factors (direct engagement with the technologies). A set of recommendations based on these strands are proposed for both future research and the real-world implementation of RMTs into clinical practice. Future exploration of experiential engagement with RMTs will be key to the successful use of RMTs in clinical care.

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Understanding the Subjective Experience of Long-term Remote Measurement Technology Use for Symptom Tracking in People With Depression: Multisite Longitudinal Qualitative Analysis

Abstract

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